Thriving with a Neurological Disease

Bill Sias MPHC, Pn1, FMSC2, YBT, FCS, M-CPT

Living your best life with a neurological disease can feel like running a marathon with a backpack full of bricks. But here’s the secret: it’s not about pretending the backpack isn’t there. It’s about learning how to carry it with strength, grace, and sometimes even a sense of humor. Let’s talk about thriving, not just surviving, when life hands you a neurological curveball.

First Things First: Redefine “Thriving”

Thriving isn’t about doing it all or being perfect. It’s about finding what makes you feel alive and leaning into it. Maybe it’s as simple as getting outside for some fresh air every day or connecting with a community that understands your journey. The goalposts might shift, and that’s okay. Success is a moving target, and that’s true for everyone—diagnosis or not.

Mindset Matters: Be the CEO of Your Health

When you have a neurological disease, managing your health can feel like a full-time job. The key is to think of yourself as the CEO of your well-being. That means:

  • Building a strong team: Your doctors, therapists, family, and friends are your board of directors. Choose people who respect your goals and listen to your needs.
  • Setting boundaries: Learn to say no to things that drain your energy. Your health comes first, no guilt required.
  • Investing in self-care: From prioritizing sleep to eating brain-healthy foods (hello, leafy greens and omega-3s!), small daily actions add up.

Movement: Your Superpower

Physical activity isn’t just good for your body; it’s medicine for your brain. Tailor it to your abilities—a walk around the block or resistance training. The goal isn’t to become a triathlete (unless you want to!), but to move in ways that feel good and help you stay strong.

Nutrition: Feed Your Brain

Your brain loves consistency and quality fuel. Stick to whole, minimally processed foods that support cognitive function and reduce inflammation. Think:

  • Healthy fats: Avocados, nuts, olive oil, animal fats
  • Powerful proteins: Beef, fish, and offal
  • Complex carbs: Leafy and root vegetables
  • Hydration: Never underestimate the power of water and electrolytes for your energy and focus

If your condition makes eating or digestion tricky, consult a Health Coach to find what works best for you.

The Power of Connection

Isolation can be one of the toughest parts of living with a neurological disease, but it doesn’t have to be. Whether it’s joining a support group, reconnecting with an old friend, or even engaging in online communities, connection can bring a sense of purpose and belonging. Don’t underestimate the power of sharing your story and hearing others’—you’re not alone in this.

The Art of Resting (Without Guilt)

Listen, rest isn’t just about doing nothing. It’s about recharging. Schedule downtime like you would a meeting or an appointment. Learn to differentiate between productive rest (naps, meditating, reading) and mindless distractions that leave you feeling more drained.

Celebrate the Wins—Big and Small

Did you make it through the day without losing your cool? High five. Found a new recipe that’s easy on your system and tastes great? Victory. Learned something new about your condition that empowers you? That’s thriving. Celebrate every step forward, no matter how small it might seem.

Keep Learning and Adapting

Neurological diseases often come with uncertainty. That’s why curiosity is your best friend. Stay open to new treatments, tools, and strategies. Advocate for yourself, ask questions, and don’t be afraid to seek second opinions if something doesn’t feel right.

Final Thoughts: You’ve Got This

Thriving with a neurological disease isn’t about denying the hard stuff—it’s about finding your way through it. It’s about resilience, creativity, and the willingness to adapt. Some days will be harder than others, but each day is a chance to write your own definition of thriving. Remember, you’re not your diagnosis. You’re a whole person, capable of strength, joy, and so much more.

If you or someone you care about has been diagnosed with a neurological disease contact me to chat or for help in building a plan, there is no obligation. 231-329-8835  Bar.and.Plate@gmail.com

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